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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Vitamin Supplements" in Q&A. To see all results and access other features, sign up for free.

What Are Everyone’s Favorite Vitamins/supplements For Fighting Fatigue And Brain Fog?

A myPBCteam Member asked a question 💭
A myPBCteam Member

Vitamin A, D, E, K and eat plenty of raw fruits and vegetables which are your true vitamins!

Anyone Have Success Stories With Supplements? Omega-3? Milk Thistle? Probiotics? Have Docs Discouraged Supplements Like They Have With Me?

A myPBCteam Member asked a question 💭
Rochester, NY
A myPBCteam Member

Had a hep doc appt yesterday--I got a strange look when I asked if Vit E was toxic (based on comment above)...it absolutely is NOT! Just don't take more than you need.

Who Has Osteoporosis And What Are You Treating It With?

A myPBCteam Member asked a question 💭
Oakland, NJ
A myPBCteam Member

Hi Kathy
I take Better Bones Builder from Women’s Heath. My Liver Doctor approved it for me. Always talk to your Doctor before adding anything. I also wear a weighted vest
around the house for a… read more

Why Was I Given Calcium Carbonate

A myPBCteam Member asked a question 💭
Cleveland, OH
Primary Biliary Cholangitis Life Expectancy and Prognosis Read Article...
A myPBCteam Member

PBC can lead to osteoporosis, due to malabsorption. I had osteopenia several years ago and it’s now full blown osteoporosis. I’m on Calcium with vitamin D, and Fosomax.

I Have Been On Ursodiol 2022 Numbers Not Really Going Down So They Gave Me Ocaliva ,but I Have Not Started Because I Really Don't Know If

A myPBCteam Member asked a question 💭
Pine Beach, NJ

also I have osteoporosis not sure what to take any what are you doing PBC and Sjogens

A myPBCteam Member

I took 5mgs of Ocaliva for 6 months it did not lower my alt, in fact it increased. Dr raised it to 10mgs and boy that did it, I was practically clawing myself from itching. After 3 days, I stopped… read more

How Do You Get Rid Of Pain In Your Bones?

A myPBCteam Member asked a question 💭
Santa Ana, CA
A myPBCteam Member

I can't do any of those things due to the extreme pain in my spinal column...

Is Anyone Having A Problem With Bleeding Gums? Before Going On Urso I Had Extensive Bruising. That's Gone, But I Have Bleeding Gums Now.

A myPBCteam Member asked a question 💭
Decatur, IL
A myPBCteam Member

Hi Roberta. I had that for awhile. I was put on a prenatal for anemia but also amped up my vitamin C and it went away. I think it is a sign of vitamin deficiency.

Anyone Have Vision Issues? Blurry Vision? Did You Get An Answer For It? Vitamin Deficiency Since PBC Interfears With Assimilation? Other?

A myPBCteam Member asked a question 💭
San Diego, CA
A myPBCteam Member

Low vitamin A levels can lead to night blindness, making it difficult to see in low light. This can be a concern for people with PBC due to issues with nutrient absorption. If you suspect vitamin… read more

Does Anyone Have Pbc Related Osteoporosis?

A myPBCteam Member asked a question 💭
Ruckersville, VA

I was diagnosed with pbc in 2020 then about a year later osteoporosis. Docs told me I was too young for osteoporosis but that it was a system of the pbc.

A myPBCteam Member

Yes I too have osteoperosis, but had it before I was diagnosed with the PBC as far as I know. I take dual advil when I have to and it does help. I was offered other meds, however chose not to take… read more

There Is No Answer For My Bone Pain Other Than Bone Replacement And My Doctors All Said The Same Thing. I Am Too Old For Surgery

A myPBCteam Member asked a question 💭
Santa Ana, CA
A myPBCteam Member

I get infusions. I still have pain . But it helps with the osteoporosis. How is your weight I had to lose weight eat healthy and strength train.baby steps Doesn’t cure but it helps put muscle instead… read more