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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Are You Frustrated With Finding Effective Treatments For Primary Biliary Cholangitis?

By A myPBCteam Member 13 answers
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What’s One Thing About Primary Biliary Cholangitis That People Rarely Discuss But Should?

By A myPBCteam Member 20 answers
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What Are Your Top Tips For Dealing With Primary Biliary Cholangitis In The Heat?

By A myPBCteam Member 15 answers
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What Lifestyle Changes Have You Found Most Effective In Managing PBC? 🏃‍♀️🥗

By A myPBCteam Member 19 answers
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335 questions

Has Anyone Gained Weight With Ursidiol?

A myPBCteam Member asked a question 💭
Benson, IL
A myPBCteam Member

Sounds like you are on the right diet. Are you possibly retaining water? Any puffiness in ankles? A good question for your Dr.

3 days ago

I Have Never Seen Any Info About PCB Other Than It Is Genetic, Bile Duct Eroding And It Makes You Tired. What Else? What Symptoms Please.

A myPBCteam Member asked a question 💭
A myPBCteam Member

Primary biliary cholangitis (PBC) has a range of symptoms that can vary between individuals. Common symptoms include fatigue and itchy skin. Other symptoms may include dry mouth and eyes, jaundice… read more

December 25, 2024

What Advice Are You Grateful To Share With Others About Primary Biliary Cholangitis?

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

I agree listen too your body

December 27, 2024

MRI Showed Cirrhosis And F/u AMA Confirms PBC. Is It Unusual For Fibrometer Test To Come Back Completely Clear? Doc Now Ordering A Biopsy.

A myPBCteam Member asked a question 💭
Grafton, WI

My liver numbers have always been pretty good except regular elevated ALT. Cirrhosis is new since mri 2 years ago. Strange stuff!

A myPBCteam Member

It’s not unusual for a FibroScan or similar elastography test to show no significant fibrosis while other tests, like MRI or biopsy, reveal cirrhosis. FibroScan measures liver stiffness, but it may… read more

December 13, 2024

When Does The Fatigue Get Better?

A myPBCteam Member asked a question 💭
Lago Vista, TX
A myPBCteam Member

Fatigue related to PBC can be persistent and challenging to manage. While treatments for PBC itself, like ursodeoxycholic acid or liver transplants, don't directly alleviate fatigue, there are… read more

December 7, 2024

Are High Immature Granlocytes Common With Primary Billary Cholangitis..please And Thank You

A myPBCteam Member asked a question 💭
Benson, IL

What’s One Thing About Primary Biliary Cholangitis That People Rarely Discuss But Should?

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

Wow, that’s a tough adjustment. Sending hugs!

January 4

Bei PBC Sollte Man Da Kein Schweinefleisch Essen?

A myPBCteam Member asked a question 💭
Deutschland
A myPBCteam Member

Ja, bei PBC sollte man Schweinefleisch vermeiden, insbesondere verarbeitetes Fleisch wie Speck und Wurst. Diese enthalten oft viel Natrium und gesättigte Fette, die Entzündungen fördern, den… read more

November 24, 2024

Did Anyone Had A High Reading On Fiberscan An Ur Specialist Wanted To Do A Liver Biopsy

A myPBCteam Member asked a question 💭
Canada, KY
A myPBCteam Member

Yes, my scans appeared to show greater disease progression than my biopsy findings. This was my second biopsy. I know, a biopsy seems really scary but it's not as bad as it sounds. I'd rather know, as… read more

November 18, 2024

Anyone Taking Milk Thistle Approved By Your Doctor? If So How Much Do You Take? Has It Made A Difference?

A myPBCteam Member asked a question 💭
San Diego, CA
A myPBCteam Member

I started Milk thistle when I was put on Urso, 250 mg twice a day for years. It’s the only herbal that the FDA recommends.

November 23, 2024
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