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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have Been On Ursodiol 2022 Numbers Not Really Going Down So They Gave Me Ocaliva ,but I Have Not Started Because I Really Don't Know If

A myPBCteam Member asked a question 💭
Pine Beach, NJ

also I have osteoporosis not sure what to take any what are you doing PBC and Sjogens

October 12
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A myPBCteam Member

My doc too wants me on Ocaliva! How is this med working for you?

October 12
A myPBCteam Member

I have osteoporosis. I get a Prolia shot every 6 months.

October 12
A myPBCteam Member

I take Prolia every six months . Been on it 7 years. But PBC does cause it.

October 24
A myPBCteam Member

I took 5mgs of Ocaliva for 6 months it did not lower my alt, in fact it increased. Dr raised it to 10mgs and boy that did it, I was practically clawing myself from itching. After 3 days, I stopped taking it. It made me worse not better. I hope you have better luck!

October 14
A myPBCteam Member

I have not started maybe November.I hesitant to add more meds. Will let you know how it goes VictoriaFleming 2

October 14

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