Quick Links
About myPBCteam
Powered By
Did Anyone Had A High Reading On Fiberscan An Ur Specialist Wanted To Do A Liver Biopsy
Yes, my scans appeared to show greater disease progression than my biopsy findings. This was my second biopsy. I know, a biopsy seems really scary but it's not as bad as it sounds. I'd rather know, as… read more
Anyone Taking Milk Thistle Approved By Your Doctor? If So How Much Do You Take? Has It Made A Difference?
No, my doctors only what they put me on. They said that they won’t be able to see what’s working
Should Those With PBC (and Likely Additional Auto Immune Diseases) Get Flu Or Covid (or Other) Vaccines? Seems Differing Thoughts
My hepatologist insists that I keep up with all vaccines. I have had every COVID vaccine available and get a yearly flu shot. I have also gotten hepatitis A and B vaccines plus the shingles, pneumonia… read more
Is Taking Bile Salts Helpful For PBC
Yes, taking bile salts can be helpful for managing Primary Biliary Cholangitis (PBC). Doctors typically prescribe bile acids to treat PBC because they help improve liver function. The U.S. Food and… read more
My Liver Biopsy Says Stage 4. Anyone In Stage 4? For How Long? I Have NO Symptoms Of Stage 4. What Are You Experiencing? Thank You...
I have had stage 4 for 2 years now. I have the itching. My arms
and legs itch the most. I made the mistake of taking Benadryl. My eyes became so incredibly dry, even crying didn't help😥. Now, I make… read more
I Am Interested In Learning More About Seladelpar Which Has Been Recently Approved And Has Shown To Lower ALP Numbers. Has Anyone Tried It?
Thank-you for letting me know what you learned. I was hoping the manufacturer's program would be more helpful to everyone due to the extremely high cost of their product.
What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃
Wow never heard of PBC being connected to enzymes or admitted it was. When I researched PBC in the beginning i kept coming across leaky gut could be involved with the autoimmune. DONT FORGET... I… read more
Hey! Doc Wants Me On Ocaliva Has Anyone Else Had To Be On Both Med (URSO/Ocliv
Is There A Cure For Pbc
There is currently no cure for primary biliary cholangitis (PBC). Treatment focuses on slowing down the disease progression and preventing permanent liver damage. Medications, lifestyle adjustments… read more
I Have Been On Ursodiol 2022 Numbers Not Really Going Down So They Gave Me Ocaliva ,but I Have Not Started Because I Really Don't Know If
also I have osteoporosis not sure what to take any what are you doing PBC and Sjogens
I take Prolia every six months . Been on it 7 years. But PBC does cause it.
Sign up for free!
Continue with Facebook
Sign up with your email
