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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Have Any One Else. Heard That Even On URSO .. And Your Liver Enzymes Is Normal Again. Don't Mean The PBC Isn't Progressing..

By A myPBCteam Member 13 answers

Does Anyone Else Think PBC Affects Your Bones? I Got Osteoporosis Really Bad.

By A myPBCteam Member 18 answers

What Are Your Top Tips For Dealing With Primary Biliary Cholangitis In The Heat?

By A myPBCteam Member 15 answers

Do You Follow A Specific Diet To Help With Primary Biliary Cholangitis?

By A myPBCteam Member 20 answers
311 questions

MRI Showed Cirrhosis And F/u AMA Confirms PBC. Is It Unusual For Fibrometer Test To Come Back Completely Clear? Doc Now Ordering A Biopsy.

A myPBCteam Member asked a question 💭
Grafton, WI

My liver numbers have always been pretty good except regular elevated ALT. Cirrhosis is new since mri 2 years ago. Strange stuff!

A myPBCteam Member

It’s not unusual for a FibroScan or similar elastography test to show no significant fibrosis while other tests, like MRI or biopsy, reveal cirrhosis. FibroScan measures liver stiffness, but it may… read more

December 13

When Does The Fatigue Get Better?

A myPBCteam Member asked a question 💭
Lago Vista, TX
A myPBCteam Member

Fatigue related to PBC can be persistent and challenging to manage. While treatments for PBC itself, like ursodeoxycholic acid or liver transplants, don't directly alleviate fatigue, there are… read more

December 7

Are High Immature Granlocytes Common With Primary Billary Cholangitis..please And Thank You

A myPBCteam Member asked a question 💭
Benson, IL

What’s One Thing About Primary Biliary Cholangitis That People Rarely Discuss But Should?

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

I totally understand what everyone is going through. I am 70 years old from South Florida. I have been diagnosed for 6 years already. I have cirrhosis, portal vein hypertension, enlarged liver and… read more

December 11

Bei PBC Sollte Man Da Kein Schweinefleisch Essen?

A myPBCteam Member asked a question 💭
Deutschland
A myPBCteam Member

Ja, bei PBC sollte man Schweinefleisch vermeiden, insbesondere verarbeitetes Fleisch wie Speck und Wurst. Diese enthalten oft viel Natrium und gesättigte Fette, die Entzündungen fördern, den… read more

November 24

Did Anyone Had A High Reading On Fiberscan An Ur Specialist Wanted To Do A Liver Biopsy

A myPBCteam Member asked a question 💭
Canada, KY
A myPBCteam Member

Yes, my scans appeared to show greater disease progression than my biopsy findings. This was my second biopsy. I know, a biopsy seems really scary but it's not as bad as it sounds. I'd rather know, as… read more

November 18

Anyone Taking Milk Thistle Approved By Your Doctor? If So How Much Do You Take? Has It Made A Difference?

A myPBCteam Member asked a question 💭
San Diego, CA
A myPBCteam Member

I started Milk thistle when I was put on Urso, 250 mg twice a day for years. It’s the only herbal that the FDA recommends.

November 23

Should Those With PBC (and Likely Additional Auto Immune Diseases) Get Flu Or Covid (or Other) Vaccines? Seems Differing Thoughts

A myPBCteam Member asked a question 💭
Oneonta, AL
A myPBCteam Member

My hepatologist insists that I keep up with all vaccines. I have had every COVID vaccine available and get a yearly flu shot. I have also gotten hepatitis A and B vaccines plus the shingles, pneumonia… read more

November 10

Is Taking Bile Salts Helpful For PBC

A myPBCteam Member asked a question 💭
Grand Rapids, MI
A myPBCteam Member

Yes, taking bile salts can be helpful for managing Primary Biliary Cholangitis (PBC). Doctors typically prescribe bile acids to treat PBC because they help improve liver function. The U.S. Food and… read more

November 9

My Liver Biopsy Says Stage 4. Anyone In Stage 4? For How Long? I Have NO Symptoms Of Stage 4. What Are You Experiencing? Thank You...

A myPBCteam Member asked a question 💭
San Diego, CA
A myPBCteam Member

Hi Linda, I had an ultra sound with elasticity done a few weeks ago and the results showed stage 4/Cirrhosis, which Not only shocked me but scared me too. I too have NO symptoms, THANK GOD! My… read more

December 13
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