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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Have Success Stories With Supplements? Omega-3? Milk Thistle? Probiotics? Have Docs Discouraged Supplements Like They Have With Me?

A myPBCteam Member asked a question 💭
Rochester, NY
April 21
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A myPBCteam Member

My hepatologist said Omega 3 is okay. We need to be careful with supplements. I used to take MCT oil in my morning latte but my hepatologist said MCT oil slows bile down, which is the opposite of what Urso is designed to do

April 23
A myPBCteam Member

My internal medicine doctor told me to stop taking all supplements when I first met him. For example, he said vitamin E is toxic. My liver numbers came down just from stopping all supplements. He referred me to a hepatologist/
gastroenterologist who I run all vitamins past for approval before I start taking them.

April 22
A myPBCteam Member

I took milk thistle religiously 3 x day for months and saw no improvement in blood tests.

May 5
A myPBCteam Member

My hepatologist has me on Vitamin A A couple of vitamin Ds. B12 fosomax once a week. He only wants me taking what he prescribed. Has me do blood work every week to check levels

April 26
A myPBCteam Member

(Copied/Pasted from link posted above)
Because toxicity associated with vitamin E administration is rare, ther- apy with vitamin E should be considered in all patients with primary biliary cirrhosis. Deficiencies of vit. amins A, D and K are well docu- mented in patients suffering from primary biliary cirrho- sis (PBC).

April 22 (edited)

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