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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Who Has Osteoporosis And What Are You Treating It With?

A myPBCteam Member asked a question 💭
Oakland, NJ
October 7
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A myPBCteam Member

Hi Kathy,
I take Better Bones Builder from Women’s Heath. My Liver Doctor approved it for me. Always talk to your Doctor before adding anything. I also wear a weighted vest
around the house for a while and lift light weights. I work on my balance.
Better bones by Dr Susan Brown .
She has many videos on the subject.

October 7
A myPBCteam Member

Hi Kathy, yes, I have osteoporosis. I am taking the generic form of Fosamax, once a week. I just did a bone density test and my bone mass has gotten better. Been on it for about 2 years. Also take a coral calcium supplement. Unfortunately, my calcium level in my blood is now high. I also did a mammogram and it is abnormal. Doing another one this Wednesday. It could be calcium deposits in the breast. I also take vitamin D3. Exercise is also good to build back bone or just stomping your feet helps. Hope this is good information for you.

October 7
A myPBCteam Member

I have osteoporosis. I two take 2 vitamin D and 1200 calcium and I was on fosomax but now I get an injection 1 a year. I exercise and walk a lot and work full tim. I sit in a hot tub or use heating pads

October 7
A myPBCteam Member

My bone specialist wants me on Prolia. I know I’ll have dental surgery with in the next 2 years. Talked with my dental team also and am still undecided. Would rather use Forteo because it will build bone, not just persevere it. Too expensive though.

October 7
A myPBCteam Member

People with Primary Biliary Cholangitis (PBC) have an increased risk of developing osteoporosis. Here are some key points:

- Prevalence: Between 20% to 45% of people with PBC develop osteoporosis
- Risk Factors: PBC interferes with the absorption of fat-soluble vitamins like Vitamin D, which is crucial for calcium Show Full Answer

People with Primary Biliary Cholangitis (PBC) have an increased risk of developing osteoporosis. Here are some key points:

- Prevalence: Between 20% to 45% of people with PBC develop osteoporosis.
- Risk Factors: PBC interferes with the absorption of fat-soluble vitamins like Vitamin D, which is crucial for calcium absorption and bone health.
- Treatment Options:
- Pain Management: Over-the-counter and prescription painkillers.
- Supplements: Vitamin and calcium supplements, but always consult your doctor before starting any new supplements.
- Exercise: Gentle exercises like Pilates, yoga, stretching, and balance exercises can help strengthen muscles around the spine and reduce chronic pain.
- Other Treatments: Massage and other therapies may also help reduce pain.

Always consult with your healthcare provider to tailor the treatment to your specific needs.

October 7

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