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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Think PBC Affects Your Bones? I Got Osteoporosis Really Bad.

A myPBCteam Member asked a question 💭
Shreveport, LA

My Arthritis Dr. Think PBC cause it to be worst. Cause we not getting the supplement to our bones. Iam on Prolia bone treatment every 6 months for 7 years and my bones have not improved..

May 31
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A myPBCteam Member

I just went to my Reumatologist and she informed me I do have osteopereosos but did not think I was ready for injection which I will not do unless absoloutely necessary. She did recommend something else starts with an f. Cannot remember the name of it. Decided not to do anything until I have next bone scan. Yes PBC does go along with causes of osteoperosis.

June 1
A myPBCteam Member

I don't have osteoporosis but did have very low levels of Vitamin D. This can be associated with PBC. Without vitamin D, the body can't utilize calcium properly, hense the osteoporosis. I'll be taking D forever,I guess.

May 31
A myPBCteam Member

I have joint pains bad, and frustrated because the heptologist I recently saw insisted that PBC does not cause joint pain. Yet I read otherwise everywhere 🤷‍♀️

November 7
A myPBCteam Member

Thank you. Yes it was fosamax

June 18
A myPBCteam Member

Hi Ellen. Was the medication your rheumatologist recommended called Fosamax? I recently started taking a generic version of it called Alendronate once a week when I was diagnosed with osteoporosis about 7 weeks ago. It seemed to help with my bone pain in about a week.

June 9

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