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Hey! Doc Wants Me On Ocaliva Has Anyone Else Had To Be On Both Med (URSO/Ocliv
I Have Been On Ursodiol 2022 Numbers Not Really Going Down So They Gave Me Ocaliva ,but I Have Not Started Because I Really Don't Know If
also I have osteoporosis not sure what to take any what are you doing PBC and Sjogens
I take Prolia every six months . Been on it 7 years. But PBC does cause it.
Hey Group Members My Doc Wants Me On Ocaliva In Addition To My URSO Has Anyone Had Success With Ocaliva?
I Take Ursodiol And Ocaliva. I Wondered If Anyone Has Had Bloating In Their Stomach…is It A Symptom Of PBC Or Side Effect Of Ocaliva?
Is Anyone On Ocaliva "only" Treatment? Unable To Tolerate Ursodiol. Would Love To Hear Your Experience Of Ocaliva "only" Treatment.
My diagnosis is PBC. Interested in learning side effects, the good and bad, etc. of Ocaliva from your experience. Also, improvements you have experienced and the time frame before you experienced improvements. Whatever you are able to share is welcome and appreciated.
Is Anyone Taking Ocaliva Along With Ursodiol? My Current Gastroenterologist Wants Me To Add This As My ALP Is Rising Slightly.
I was diagnosed in 2003 and have been stable at stage 1-2 since then. My ALT and AST are slightly elevated but stable. My ALP is what Dr. is worried about even though it is 167. I take 900 mg per day of Ursodiol. I am worried about adding another medication with unknown side affects and efficacy. I have no real symptoms right now other than some fatigue and occasional mild itching. My last test showed little to no liver scarring/damage
Thank you all in advance for any information you can… read more
Hi Diane! Did you go on the Ocaliva and is it helping?
My GI IS MOVING ME FROM Ocaliva To Seladelpar.. Because FDA Says Former Is Less Effective. Anybody Have Experience W This?
That’s the rationale I heard. I’ll be curious to see how this new one does. Ocaliva brought my numbers into “normal” range…
Have Anyone Else Heard They Might That The Drug. Ocalivas Off The Mkt. Said It's Causing More Harm To.people Who Have Scaring Of The LiverI
I got a Web Site call Emergency Email . It's tell you all the latest updates on meds. Stuff being recalled. And food that got food illness. Since I got salmon poisoning .From Wendy's lettuces I found it. ...
At a PBC meeting i learned it does not stop PBC from progressing. And yes its on its way out at this point although its still in court.
Is Anyone Taking Ocaliva? Does It Help? Is A Hard To Get And Pay For?
I just recently started that. You should be able to get a zero copay card thru Intercept. I don’t pay for mine.
If You Are In Canada And Lose Or Have No Benefits, The Navigate Program Covers OCALIVA Cost. Call (Phone Number Can Only Be Seen By myPBCteam Users) For Next Steps
I asked a nurse at Navigate and they said only Canada but why not reach out and see if they have any next steps for you ?
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