How Do You Deal With The Mental Load Of Your Health Care?
Figuring out the logistics of our healthcare is challenging when you are healthy - with a chronic health condition like PBC (I also have another related autoimmune disorder, Sjogren's) it becomes a nightmare
Having multiple conditions and juggling multiple doctors, with each one suspecting the other condition is causing your issue. They are not concerned with you as a whole - just what they are immediately looking at and not concerned about any overlap or mentioning other conditions that need… read more
The navigation of health care is very stressful. The doctors seem to not communicate and it is discouraging. Try to stay positive and keep pushing forward, that is what I'm trying to do. HUGS! Happy thanksgiving.
It can be difficult for sure. I have a good team of doctors and I know they are helping me, but it gets very overwhelming sometimes. I read, play on my computer or talk to friends to help me relax and destress. I’m sick of doctors appointments but I am a very compliant patient .
Thanks All!
I have been working on this and discovered -
I have multiple issues and make sure that I space out my appointments and deal with one issue at a time.
I try to use my info from one doctor to share with my other - my labs are shared and my cancer scans are expanded to show my GI tract and lymph nodes with my gastro and primary care doctors.
I use patient portals more efficiently now - recently was able to settle a large overpayment and receive money back with low stress.
Mail order prescription service is my friend.
When going for lab work in a stand alone Iab, I make sure that I have a copy of the orders so that when they say they haven't received them I can hand them a copy.
It's a learning process and I am getting there.
I completely understand where you are coming from. Itt isvery diffcult to manage all that. Sending hugs out to you! I am here if you like to talk or rant. Happy Thanksgiving.
I know that God has got this and he loves me and will do the best for me!
Also have a very caring Doctor and his great team who will help me with any question!1
I Have Gallstones But Have Chosen Not To Have My Gallbladder Removed, Never Had An Attack, Is That A Problem?
When Do You Know Your Ready For A Liver Transplant?
How Do You All Deal With The Overwhelming Fatigue?