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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Deal With The Mental Load Of Your Health Care?

A myPBCteam Member asked a question 💭
Rowlett, TX

Figuring out the logistics of our healthcare is challenging when you are healthy - with a chronic health condition like PBC (I also have another related autoimmune disorder, Sjogren's) it becomes a nightmare
Having multiple conditions and juggling multiple doctors, with each one suspecting the other condition is causing your issue. They are not concerned with you as a whole - just what they are immediately looking at and not concerned about any overlap or mentioning other conditions that need… read more

September 24
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A myPBCteam Member

It can be difficult for sure. I have a good team of doctors and I know they are helping me, but it gets very overwhelming sometimes. I read, play on my computer or talk to friends to help me relax and destress. I’m sick of doctors appointments but I am a very compliant patient .

September 24
A myPBCteam Member

Managing the mental load of healthcare, especially with chronic conditions like PBC, can indeed be overwhelming. Here are some strategies to help streamline your care and reduce stress:

1. Join a PBC Community
- Connect with others who understand life with PBC. Sharing experiences and advice can be incredibly Show Full Answer

Managing the mental load of healthcare, especially with chronic conditions like PBC, can indeed be overwhelming. Here are some strategies to help streamline your care and reduce stress:

1. Join a PBC Community:
- Connect with others who understand life with PBC. Sharing experiences and advice can be incredibly supportive.
- myPBCteam is a social network where members come together to ask questions, give advice, and share their stories.

2. Make Lifestyle Changes:
- Follow recommendations from the American Liver Foundation, such as reducing salt and fat intake, drinking lots of water, exercising, managing stress, and quitting smoking if you smoke.
- Practice healthy skin care habits.

3. Find Stress Relief Outlets:
- Eliminate stressors and ensure you get enough rest. Fatigue is a common symptom of PBC.
- Consider activities like spa nights at home, using a foot spa, face masks, or other relaxation techniques.
- Explore therapies like ozone therapy, massage, and acupuncture.

4. Organize Your Healthcare:
- Keep a detailed record of your medical history, appointments, and medications. This can help you track everything and ensure nothing is missed.
- Use apps and web pages to manage your health records, but be prepared for occasional technical issues.

5. Communicate with Your Healthcare Providers:
- Be proactive in discussing how your conditions might overlap and affect each other. Ensure all your doctors are aware of your full medical history.
- Advocate for yourself to get the necessary preauthorizations and accurate estimates for procedures.

6. Manage Prescriptions and Appointments:
- Follow up on electronic prescriptions and scans to avoid delays. Keep a list of contacts for quick reference.
- Utilize appointment reminders but set boundaries if they become overwhelming.

7. Financial Planning:
- Stay on top of insurance changes and copay increases. Keep track of authorizations and deductibles.
- Regularly review your bills and credits to ensure accuracy.

By implementing these strategies, you can better manage the complexities of your healthcare and reduce the associated stress.

September 24

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