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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

HAS ANYONE FOUND A SOLUTION TO PAIN IN THE BONES?

A myPBCteam Member asked a question 💭
Santa Ana, CA
July 20
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A myPBCteam Member

I wish I did! My hip pain wakes me up just about every night. They don't hurt while walking my dog, only at night and like right now. Advil does help but I was born with only 1 kidney and at 64 I have started with kidney disease. So I don't want to make that worse so I avoid all aspirin products.

July 22
A myPBCteam Member

I don’t think you’re too old. My husband’s cousin is 80 and have hip replacement surgery.

July 27
A myPBCteam Member

your answer is very "techy" for me but you did NOT say all this "repairs" bones that are damaged! I asked my liver doctor if I could get a surgery last year when I was 74 and she said I was too old for any surgery...

July 22
A myPBCteam Member

I have been experimenting with crystals & sound frequency - tuning forks & singing bowls. And my friend is a Reiki Master & started giving me Reiki. I've had a lot of pain in my fingers, toes & knees, and I barely had any pain for about 2 weeks after my first Reiki session. I've been using tuning forks daily too. So not sure if it's the Reiki, the crystals, the tuning forks, or just a coincidence, but something is helping the joint pain. 136.1 hz tuning fork is a great frequency for joint pain, I've read, so I've been using that daily directly on my joints. Then I listen to c and g (together - one near each ear), and just purchased a solfeggio set which is supposed to be good for so much - including the liver (frequencies 174 hz, 285 hz, and 528 specifically). I'm also trying various crystals. Crystals have natural vibrations, so they're believed to help with pain & inflammation. I'm willing to try anything!

July 22
A myPBCteam Member

Here are some tips to help manage bone pain associated with Primary Biliary Cholangitis (PBC):

- Exercise and Physical Therapy: Gentle exercises like Pilates and yoga can strengthen muscles around the spine and reduce chronic pain. Stretching and balance exercises can also help offset the effects of osteoporosis
- Show Full Answer

Here are some tips to help manage bone pain associated with Primary Biliary Cholangitis (PBC):

- Exercise and Physical Therapy: Gentle exercises like Pilates and yoga can strengthen muscles around the spine and reduce chronic pain. Stretching and balance exercises can also help offset the effects of osteoporosis.
- Over-the-Counter and Prescription Painkillers: These can help manage osteoporosis-related pain. Always consult your doctor before starting any new medications.
- Vitamin and Calcium Supplements: Essential for bone strength, but speak with your doctor before starting any new supplements.

For more detailed information, please refer to the provided knowledge base.

July 20

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