I have a similar situation, my daughter actually called me lazy which hurt a lot! I have never been lazy my entire life but when fatigue hits I listen and do not try to push through it.

That’s great they understand.
It my daughter that just doesn’t which bothers me the most. I feel as if she thinks I’m a hypochondriac but we know as sufferers it’s real We do not like feeling this way.

I totally relate to your question. It's the reason I just joined this network.

All the time! They tell me to go to bed early and I explain it is a gut wrenching fatigue that feels like life has been drained from me. Sleeping doesn't help!

I hear you! My father (who is 92) really doesn't get it. Luckily, I have great support with rest of my family and friends.