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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do Any Of You All Have Other Autoimmune Disorders Along Side PBC? Do You Have Other Organ Involvement Including Intestinal,pancreas,gall B?

A myPBCteam Member asked a question 💭
Abingdon, VA
February 27
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A myPBCteam Member

My mother had sarcoidosis and osteoporosis and high blood pressure. She was never diagnosed with PBC, however I wonder, is PBC a thing that is passed down in family genes? I have PBC Osto and high blood pressure. I was just diagnosed 3 months ago, so do not know alot about it, trying to find out all I can. My doctor is fantastic and is always there for me

March 4
A myPBCteam Member

Hi Stephanie, I have Vitiligo, atrophic gastritis and 2 others. Gallbladder removed in 2019 which is what has lead to PBC as my newest diagnosis as the pain never went away... From the outside, people cannot tell. But I feel like a trainwreck inside and my joints hurt alot.

June 20
A myPBCteam Member

So far no other organs involved for me. As for other autoimmune disorders I am HLA-b27 positive, I am being treated for Nr-AxSpa, basically it means axial spondylosis that is not showing up on imaging. I have degenerative discs, osteoarthritis in back, SI joints, and fingers with a strong family history of autoimmune disorders including Ankylosing Spondylitis, RA, and psoriatic arthritis. My daughter tests positive for AMA but so far no elevated liver enzymes.

February 27

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