Do You Personally Feel Able To Work Full Time With PBC?
I have extreme fatigue, my brain just doesn't fire like it used to, nausea is a part of my day and my joints (especially hips) ache. I'm only 57 and don't want to stop working and feel unproductive but wow, this is uphill with a backpack full of rocks.
Testing started fall of 2022 so around then. Why? Does the fatigue and brain fog get better. BTW I hate ‘brain fog’ - that sounds like I’m groggy or having a 57-year-old moment. I was low iron for decades so have experienced temporary cognitive issues due to low iron. But now I mean serious memory issues like not being able to even envision how to get somewhere. Totally blank. I mean rereading stuff 10 times to try to understand what it’s saying or asking - real comprehension issues. Sometimes in convo’s, I just don’t get what the person is saying.
Tim Hortons staff: “Do you want me to scan your app?”
I’m like ‘what is she asking me? Scan? Scan an app???’
What is happening to me???
I did start ssdi in 2013. I did get a lawyer just because I really couldn't understand the paperwork. I filed in 2013 and in TX there is a limit of what a lawyer can charge. It's 3000 here and it is taken from back pay owed.
I’ve been on Disability since 2009. I have the PBC, Raynaud’s, Mitchondrial Myopathy,Osteoarthritis,Connective Tissue Disease, and a neck and back injury from a automobile accident in 2003. I used to be a CNA but, it’s impossible to lift and maneuver clients with these disorders.
There just is no balance. I’ve been trying for more than a year to adjust to Urso, it just makes me feel lousy. Some days it’s stomach aches, sometimes just ‘gut rot’ , usually nauseas, but it keeps my alk phos down so I choke it back.
Oh no giving up. Just surprised how real this fatigue is. I thought ‘oh a little tired - no big deal’ but wow, this level of fatigue was not expected
My Question Is If My Numbers Are Good And Normal But My M2 Antibodies Are 167 And I Have No Symptoms So This Must Mean My Bile Is Fine ….
Can Your Blood Test Show You Don't Have PBC. Iam Confused My Arthritis Dr. Call And Said It's Not Showing Up On My Blood Test.
Has Anyone Qualified For SSDI With PBC Diagnosis? I Have Hypothyroidism Also.