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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Question Is If My Numbers Are Good And Normal But My M2 Antibodies Are 167 And I Have No Symptoms So This Must Mean My Bile Is Fine ….

A myPBCteam Member asked a question 💭
Rockaway, NJ

Why do I have to inject more bile on Urso ? I had side effects and felt like shit .

4 days ago
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A myPBCteam Member

I started it slowly and was okay except for the peeing frequently and then was on two pills and had headache and I never have headaches or pain in my body then he said take full dose . Could not stop runny nose and headache and a pain like inflammation on my right upper side into my back . I was also losing hair . I stopped it in September was only on full dose one month . I finally feel like myself and no pain . I will try another makers dose at 250 one pill a day but after holiday. Sometimes Too Much Medication isn’t for everyone ! We are not all one size fits all. Maybe I will need more in time we don’t know . There are so many other ways to die which we never know when that is . I just don’t want to feel horrible . I am very body aware. This took me by complete surprise . I am allergic to so many medications and only take my vitamins and have my whole life and exercise daily my own routine . I eat better than ever and I did retire I was a hairdresser for 47 years and all that chemical exposure ugh . My alp is 127 which in some labs is normal for a 65 year old . Like I mentioned maybe it is too much Urso for some to take . There are always exceptions in nature .

4 days ago
A myPBCteam Member

Hi Sheila what other autoimmune disease do you have ? All of my liver enzymes are way low

1 day ago
A myPBCteam Member

Barbara I did like you. I took half my dose of URSO. Anc my liver enzymes went back to normal the first month. But I now do have others autoimmune disease..Because of PBC . It kept my stomach upset and back pain every time I took the full dose.

1 day ago
A myPBCteam Member

Even if your bile flow seems fine and you have no symptoms, Urso (ursodiol) is often prescribed for PBC to help protect your liver from further damage. It works by improving bile flow and reducing inflammation, even in early or asymptomatic stages. Stopping treatment could risk progression. If side effects are severe, talk Show Full Answer

Even if your bile flow seems fine and you have no symptoms, Urso (ursodiol) is often prescribed for PBC to help protect your liver from further damage. It works by improving bile flow and reducing inflammation, even in early or asymptomatic stages. Stopping treatment could risk progression. If side effects are severe, talk to your doctor about adjusting the dose or exploring alternatives.

4 days ago

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Grapevine, TX

What Kind Of ALP Numbers Are Associated With Particular Stages Of PBC?

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Loganville, GA

Have Any One Else. Heard That Even On URSO .. And Your Liver Enzymes Is Normal Again. Don't Mean The PBC Isn't Progressing..

A myPBCteam Member asked a question 💭
Shreveport, LA
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