Connect with others who understand.

Sign up Log in
About myPBCteam
Powered By
Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Not Yet Diagnosed But...

A myPBCteam Member asked a question πŸ’­

Not yet diagnosed but researching until my next doctor's appointment: I had one round of bloodwork done and based on the results, my hepatologist sent me for another round. Those results came back positive for AMAs (63.9). Of course, I referred to my "round-the-clock doc" that led me to a PBC diagnosis. Did anyone get diagnosed based only on this? Any insight into your liver biopsy procedures?

September 9 (edited)
β€’
View reactions
A myPBCteam Member

Thanks, Lynita! Currently, my ALP levels are normal, though. Guess I'll see what he says next week.

September 11
A myPBCteam Member

Helpful information - thank you! Healthy wishes for you!

October 8
A myPBCteam Member

Being in the beginning stage Nutrition and Exercise is the key. I am 70 and have good numbers, no itch, and feel good. It takes work. I don’t salt my food. I read labels to check salt, sugar, fat content. No process foods. Organic and fresh.
Wholegrain bread and brown rice. I have to eat around 60 to 90 grams of protein
daily to keep muscle mass. I no longer crave a large piece of chocolate cake or
a glass of Baileys on ice. I am focused on following my Liver Doctors orders and keeping my Liver calm. We are here to support your journey. You are not alone.
Best wishes
Deb

October 8
A myPBCteam Member

Thank you for that! I had my liver biopsy and all was clear there. I had a terrible time with pain and was in the ER the day after. They did labs and the ALT and ALP were back down to normal but AST still a little high; they didn't test for ALP so not sure there. I meet back with the doctor next week and will see what he says. Based on what I know now, I think it'd not be a good idea to start URSO? It just seems like it's waaaaay too early.

October 8
A myPBCteam Member

It sounds like your PBC has been early.
URSO
Get a book on what to eat and not eat
Talk to your doctor about vitamins and herbs and follow what he says
Exercise,
Hydrate
Rest
Best wishes

October 7

Related content

View All

Does Anyone Else Think PBC Affects Your Bones? I Got Osteoporosis Really Bad.

A myPBCteam Member asked a question πŸ’­
Shreveport, LA

Have Any Of Yours Doctors Made You Get The Heptis B Shots. I Was Like My Life Style Is Not Like That. But She's Said It's So Much Going Arou

A myPBCteam Member asked a question πŸ’­
Shreveport, LA

Anyone Else Get Dry Mouth With A White Tongue Sometimes?(especially In The Morning)? Candida?

A myPBCteam Member asked a question πŸ’­
Stoneham, MA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in