The brain fog, muscle cramps, bone aches and the heavy bouts of fatigue. My family and friends don't get it. Act like they're a doctor and ask what I'm eating or tell me what to eat, tell me to exercise more, and even worse, tell me it's mind over matter or just roll their eyes at me. They say I look fine so they don't understand why I'm having these symptoms. Definitely wreaks havoc on your mental well-being when people don't believe what you are experiencing and are not supportive, even after you've shared info about PBC with them from reputable medical sources.

Brain fog, muscle cramps and feeling alone.

For me, it is the fatigue. I talk to my husband about it, but it doesn’t really get the intensity of it. My friends don’t understand the fatigue at all and give me grief when I suggest we meet earlier for outings.

I understand maybe because we don't look sick they just don't get it,so I just try not to say to much even to my husband,I think he tries to understand but he doesn't get it either,just people who are there understand,hugs to all and stay strong ❤️

Ronda I am there with you. I have zero support from family or friends. Even when you try to educate them. They still don't understand.