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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Is The Deal With Hair Loss? Also What Does One Recommend To Stop It Or For Regrowth?

A myPBCteam Member asked a question 💭
Maine, NY
July 4
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A myPBCteam Member

Ellen,
I’ve been using a new Shampoo because my hair is thinning. I have Fine hair anyway. But yesterday when I was at the Hair Salon my Beautician notice the difference and was shocked.
It’s called: OGX Biotin and Collegen. It’s really made a big difference in the body of my hair.
For years we have complained about hair loss with Urso. With some it was worse than others. And I know that with Thyroid issues that causes hair loss as well, so hard to tell with us because so many of us have Thyroid issues. This all goes back to the Auto Immune connection.

I was diagnosed (dx) 30 yrs ago. I’ve just started using this Shampoo and I love it.
It’s in a purple bottle with a yellow cap.
Good Luck
JeanAZ

July 4
A myPBCteam Member

Hi Ellen how long have you had PBC , what maker is your Ursodol, also are you taking vitamins ? Sometimes women lose hair because of stress like a loved one dying or moving .. I've seen it I am retiring from being a Beautician of 47 years . If you are using Pantene stop immediately . If your not peeing good start taking a cranberry supplement and drink measured amounts of water or juice without added sugars. Please when you wash your hair massage your scalp . I don't know to much yet about why urso can cause hair loss. I don't think they know either. I just want you to know access your needs and adjust. There is always minoxidil. But once you start you will always have to use it. I hope this helps, anxiety needs to be calmed. You may want to start CALM. It is a magnesium supplement . Sending you a big hug

July 4
A myPBCteam Member

I use Calm too, but sparingly, and luuuuuv it! Only 1 tsp, I drink it before bedtime and sleep like a rock! It's wonderful. Just bought some OGX and going to give it a try!! Also, I have recently heard about Rosemary Oil helping with hair growth. Does anyone use it?

July 4 (edited)
A myPBCteam Member

Thank you so much for your adivse. I will look into the Calm and yes stress can do crazy things to us. I have been diagnosed since December of 23, but think I have had this for several years. Never had any issues with hair loss until I started taking the Urso. Do not know the maker of it, the pill has a 250 on it. Says Generic for urso 250 on the bottle. Should I try Biotin for shampoo

July 4
A myPBCteam Member

As for Biotin your better to take the supplement . Also rinse your hair very well after shampoo and if you use conditioner rinse your scalp .

August 20

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