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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Anyone Have Success Stories With Supplements? Omega-3? Milk Thistle? Probiotics? Have Docs Discouraged Supplements Like They Have With Me?

By A myPBCteam Member β€’ 11 answers

Do You Often Feel Like You Are Fighting A Bug And Starting To Get Sick?

By A myPBCteam Member β€’ 10 answers

How Do Beverages With Caffeine Affect Your PBC?

By A myPBCteam Member β€’ 28 answers

What Are Your Top Tips For Dealing With Primary Biliary Cholangitis In The Heat?

By A myPBCteam Member β€’ 15 answers
283 questions

Can We Take Biotin If On Orso And Have Hih Blood Pressure

A myPBCteam Member asked a question πŸ’­
Maine, NY
A myPBCteam Member

You should always ask your dr.

May 30

Just Started Taking Ursodiol. My Hepatologist Said There Is A Risk Of Hair Loss With This Medication. Has Anyone Experienced This?

A myPBCteam Member asked a question πŸ’­
Carlton, GA
A myPBCteam Member

I am also taking vitamin d3 per my dr as my vitamin d was not even showing on my blood work. It has come up since last appointment. I have noticed some hair loss and hope that is does not get any… read more

April 16

Could You Share Any Dietary Changes And Tips That Have Helped With PBC?

A myPBCteam Member asked a question πŸ’­
San Francisco, CA
A myPBCteam Member

The weight thing is so distressing for me! Can’t seem to loose and slowly have added! I HAVE TO SAY, GOING THE WRONG DIRECTION. WTH?πŸ€¦πŸ»πŸ™ƒ

June 1

Does Anyone Have Upper Right Hand Pain In Abdomen From Taking Urso?

A myPBCteam Member asked a question πŸ’­
Rockaway, NJ
A myPBCteam Member

I actually went to the Dr because of right side rib pain . I thought I just had a side ache that would not go away so they did blood test and that is how I got diagnosed with PBC . Also I read that… read more

April 3

I Have Heard That Some PBCers Have Been Told To Avoid Turmeric, Has Anyone Else Heard This As Well?

A myPBCteam Member asked a question πŸ’­
Albuquerque, NM
A myPBCteam Member

It really helps me.

April 10

Has Anyone Developed Kidney Issues From This?

A myPBCteam Member asked a question πŸ’­
Schroon Lake, NY
A myPBCteam Member

Ckd stage 2. No one has said it's from this but I believe it is

March 26

I’m 43 Years Old. Was Just Diagnosed Today Based On Bloodwork And Biopsy. Have Debilitating Fatigue, Is That Normal?

A myPBCteam Member asked a question πŸ’­
Rockville Centre, NY
A myPBCteam Member

I had issues with fatigue prior to my diagnosis from other health issues, but it has somehow become worse since. 😞 Try pacing yourself as much as possible

March 29

I Get Diarrhea And Stomach Cramps Shortly After Eating And Taking Ursodiol Does Anyone Have This Issue?

A myPBCteam Member asked a question πŸ’­
Grafton, OH
A myPBCteam Member

Yes, I also have pancreatitous, that's what causes the stomach pain, when I get that I just have to stuff like chicken soup, or eat sm bland meals , as well as just water.

May 30

Does Anyone Else Have Trouble On The Urso..?

A myPBCteam Member asked a question πŸ’­
Shreveport, LA

It's keeps my stomach upset. My Dr put me on 3 250 mg . A day but I just take 2 and my liver enzymes have gone down. If I take 3 a days I can't keep nothing in.

A myPBCteam Member

my drs agreed to lowering my dose as long as my numbers stay good, if it starts going up again they will adjust the dose. Definitely talk with your doctor about it.

March 29

Does Anyone Have Both Lupus And PBC?

A myPBCteam Member asked a question πŸ’­
Cleveland, OH
A myPBCteam Member

I am negative for Lupus, but I am HLA-B27 positive so I am seeing a rheumatologist for suspected axial spondylo arthritis. It is not uncommon to have more than one autoimmune disorder, in fact its… read more

March 29 (edited)
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