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Questions & Answers

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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Anyone Have Success Stories With Supplements? Omega-3? Milk Thistle? Probiotics? Have Docs Discouraged Supplements Like They Have With Me?

By A myPBCteam Member 11 answers

Are You Frustrated With Finding Effective Treatments For Primary Biliary Cholangitis?

By A myPBCteam Member 12 answers

What Are Your Top Tips For Dealing With Primary Biliary Cholangitis In The Heat?

By A myPBCteam Member 15 answers

Have Any One Else. Heard That Even On URSO .. And Your Liver Enzymes Is Normal Again. Don't Mean The PBC Isn't Progressing..

By A myPBCteam Member 12 answers
283 questions

Why Do People On Here Hardly Ever Answer A Question. All. Many Do Is Give Hugs Or Likes. We Are Looking For Support

A myPBCteam Member asked a question 💭
Maine, NY
A myPBCteam Member

I see my Dr this week. My liver enzymes were steadily rising and pcp sent me to a specialist. Urso results have been great. Itching is crazy. My specialist told me NOT to take any supplements
I will… read more

June 10

Does PBC Cause Vertigo?And If So What Can I Do About It.

A myPBCteam Member asked a question 💭
SKIFF, ALBERTA

I have PBC, IBS, GERD, hyenas hernia. fibromyalgia, arthritis. Lactose intolerance.

A myPBCteam Member

Yes so I went for testing and do have BPPV. They just don’t know why it keeps coming back over and over. But I have exercises to help now. 😀

July 5

How Does The Pain EVER Go Away In Your Bones? Meds, Creams, Patches DO NOT HELP THE BONES!!

A myPBCteam Member asked a question 💭
Santa Ana, CA
A myPBCteam Member

Thank you Julie.

July 14

I Have PBC & Sjogrens. Docs Talk PBC But I Think Sjogrens Causes Daily Issues. Are You Confused About What/how To Treat & Causes ?

A myPBCteam Member asked a question 💭
Oneonta, AL
A myPBCteam Member

It’s just impossible to figure out what symptom belongs to what disease and how to treat or manage it

April 16

Newly Diagnosed With PBC. Has Anyone Had Pancreatitis Symptoms For A Few Hours After Taking A Dosage (2 500mgm Tablets) Ursodiol?

A myPBCteam Member asked a question 💭
Mcgregor Tx
A myPBCteam Member

I don't have any problems now with taking ursodiol . I take all 3 tabs after breakfast around 8:30 or 9am.

April 22

Has Anyone Tried Using Artificial Tears For Dry Eyes? Did It Help?

A myPBCteam Member asked a question 💭
Vancouver, BC
A myPBCteam Member

Thanks Christine! That's good info. 😊

May 26

So Who Will Be Watching The Solar Eclipse April 8th? I’m In Northern Illinois So We Should See Almost Totality.

A myPBCteam Member asked a question 💭
Palatine, IL
A myPBCteam Member

It was amazing here in Maine

April 16

Does Anyone Have An Enlarged Spleen?

A myPBCteam Member asked a question 💭
Sharon, CT
A myPBCteam Member

Thanks. My fibro scan didnt showed any significant scaring yet. My hemtologist said she didn't see anything not expected due to PBC and cleared me for hernia surgery that I have been avoiding. This… read more

May 17

Is Anyone Taking Ocaliva Along With Ursodiol? My Current Gastroenterologist Wants Me To Add This As My ALP Is Rising Slightly.

A myPBCteam Member asked a question 💭
Sarasota, FL

I was diagnosed in 2003 and have been stable at stage 1-2 since then. My ALT and AST are slightly elevated but stable. My ALP is what Dr. is worried about even though it is 167. I take 900 mg per day of Ursodiol. I am worried about adding another medication with unknown side affects and efficacy. I have no real symptoms right now other than some fatigue and occasional mild itching. My last test showed little to no liver scarring/damage
Thank you all in advance for any information you can… read more

A myPBCteam Member

Hi Diane! Did you go on the Ocaliva and is it helping?

October 13

I Was Wondering If Anyone Could Tell Me About Their Experience On Having A Liver Biopsy, I Am Scheduled Soon For One.

A myPBCteam Member asked a question 💭
Louisville, KY
A myPBCteam Member

I had a biobsy about two years ago. It was c-scan guided and did not hurt of cause much discomfort. It took about an hour.

April 8
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