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Questions & Answers

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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Often Feel Like You Are Fighting A Bug And Starting To Get Sick?

By A myPBCteam Member β€’ 10 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? πŸŽƒ

By A myPBCteam Member β€’ 10 answers

What Lifestyle Changes Have You Found Most Effective In Managing PBC? πŸƒβ€β™€οΈπŸ₯—

By A myPBCteam Member β€’ 18 answers

Are You Frustrated With Finding Effective Treatments For Primary Biliary Cholangitis?

By A myPBCteam Member β€’ 12 answers
283 questions

Has Anyone Ever Tried "Liver Renew"? This Is Advertised As A Herbal Addition To Patients With PBC. I Am Very Curious, Sounds Great.

A myPBCteam Member asked a question πŸ’­
Chattanooga, TN

I have Stage 2 PBC, hepatitis granuomatosis, , fatty liver, Auto-immune hepatitis, and NASH. Taking Ursidiol for 2 years.

A myPBCteam Member

I would like to know the answer as well.

May 19

Does Anyone Else Have An ALP Of 300 But No Other Blood Test Indicators Of Their PBC? Even My Bilirubin Is Normal. Only Vit D Is Low.

A myPBCteam Member asked a question πŸ’­
East Alton, IL
A myPBCteam Member

I have had biopsy and fibroscan done ....yes to PBC confirmation.

May 5

I Was Wondering If There Are Any People In The Group From The Boulder Area?

A myPBCteam Member asked a question πŸ’­
Boulder, CO

Have Any One Else. Heard That Even On URSO .. And Your Liver Enzymes Is Normal Again. Don't Mean The PBC Isn't Progressing..

A myPBCteam Member asked a question πŸ’­
Shreveport, LA

I read that's it's just bring your liver enzymes down. But don't stop the progressive of it..

A myPBCteam Member

Urosidiol just slows it down

May 15

Diagnosed At Stage 3 Almost 10 Years Ago. What Is The Normal Prognosis?

A myPBCteam Member asked a question πŸ’­
Washington, DC
A myPBCteam Member

I'm on the urosidiol and it hasn't worked so my GI is adding fenofibrate

May 15

Is Anyone Else In F3 And For How Long And What Meds Do You Take?

A myPBCteam Member asked a question πŸ’­
Mississippi State, MS
A myPBCteam Member

Hi Sonya, I’m not sure what is F3 ? Do you mean stage 3 fibrosis?

May 20

I'm Wondering If It's OK To Go Into Tanning Bed ? I Read That UV Lights Were Ok But Does Anyone Know For Sure ? Thanks In Advance.

A myPBCteam Member asked a question πŸ’­
North Branch, MN
A myPBCteam Member

Leah and Ellen she told me no tanning bed.

June 10

Is Any One Else Cholesterol Is High?. But Not Getting Medicine For It. If So What Are You Taking?

A myPBCteam Member asked a question πŸ’­
Shreveport, LA
A myPBCteam Member

Yes I had high cholesterol, 8,5. Got simvastatine but I felt really bad on that medicine. All my joints were hurting. Now I am on rosuvastatine 10 mg and ezetimibe 5 mg and my numbers are okay!

November 4

What Tips Would You Share To Help With Seasonal Allergies?

A myPBCteam Member asked a question πŸ’­
San Francisco, CA
A myPBCteam Member

Claritin and Flonase too

May 11

Anyone Have Success Stories With Supplements? Omega-3? Milk Thistle? Probiotics? Have Docs Discouraged Supplements Like They Have With Me?

A myPBCteam Member asked a question πŸ’­
Rochester, NY
A myPBCteam Member

Had a hep doc appt yesterday--I got a strange look when I asked if Vit E was toxic (based on comment above)...it absolutely is NOT! Just don't take more than you need.

May 9
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