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Questions & Answers

Get practical advice and insights from people who understand

Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's A Common Misconception About Primary Biliary Cholangitis?

By A myPBCteam Member 18 answers

Which Primary Biliary Cholangitis Symptom Surprised You The Most?

By A myPBCteam Member 26 answers

How Do Beverages With Caffeine Affect Your PBC?

By A myPBCteam Member 28 answers

Have Any One Else. Heard That Even On URSO .. And Your Liver Enzymes Is Normal Again. Don't Mean The PBC Isn't Progressing..

By A myPBCteam Member 12 answers
283 questions

Can Anything Beside Melatonin Be Done For Insomia?

A myPBCteam Member asked a question 💭
Erie, PA
A myPBCteam Member

Hey @A myPBCteam Member - I know many people who have found success in Magnesium before bed. Maybe ask your doctor and see if they recommend this?

June 11

Can You Still Get Portal Hypertension With Normal LFT?

A myPBCteam Member asked a question 💭
Saginaw, MI
A myPBCteam Member

LFT IS liver function tests
https://my.clevelandclinic.org/health/diseases/...

June 6

How Did Everyone Find Out They Had PBC?

A myPBCteam Member asked a question 💭
Lexington, TN
A myPBCteam Member

Liver biopsy

July 11

June 1st 2024 Question-Do Any Of You Experience “restless Legs?” Just Wondering! I Am, And Not Just At Night Either! This Is So Annoying

A myPBCteam Member asked a question 💭
Waukesha, WI
A myPBCteam Member

Sorry your medication results are not as you are expecting. Keep consulting with your care team to find the best treatment available. 😊

June 2

Anybody Else Have UTIs With Their PBC

A myPBCteam Member asked a question 💭
Rowlett, TX

Never had one before in my life. Two month's after starting Ursodiol I started having to pee more. A lot more! Was tested by my PM and I have been told I have a UTI. Looked up on google and read the National Institute of Health has studies on reoccurring UTIs and PBC. Boy this stuff just gets better and better🤐

A myPBCteam Member

Thanks. I try to be positive. If I can't do something today, I try again tomorrow 😁

June 8

Is There A Supplement Or Anything Available For An Increase Or Booster For Energy?

A myPBCteam Member asked a question 💭
California, CA

I have recently been diagnosed with PBS in last stage (on list for liver transplant).🥺

A myPBCteam Member

I’m sorry to hear that your energy is low. I wish I had an answer. Discuss this with your specialist.

May 28

How Do You Tell Liver Pain From Kidney Pain Or Musculoskeletal Pain? I Have New Pain After 12 Years

A myPBCteam Member asked a question 💭
Columbia, SC
A myPBCteam Member

Holly, I too was diagnosed with Osteoporosis , and was put on a supplement to help. I get a new scan in a few weeks to see if it’s helping .

May 27

What's A Common Misconception About Primary Biliary Cholangitis?

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

When you try to tell people, they think you were a alcoholic.

August 19

I’ve Read That A Liver Transplant May Be Part Of Treatment For PBC. What Are The Criteria To Be Eligible For A Liver Transplant?

A myPBCteam Member asked a question 💭
Reisterstown, MD

I was diagnosed with stage 4 PBC two years ago. I am also dealing with Parkinson’s disease, diagnosed 8 years ago.

A myPBCteam Member

Good luck Julie

May 21

What Kind Of ALP Numbers Are Associated With Particular Stages Of PBC?

A myPBCteam Member asked a question 💭
Loganville, GA
A myPBCteam Member

I hope all goes well, the whole ordeal makes me nervous also. No way to know what kind of outcome to expect on anything.

May 25
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