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Questions & Answers

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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Have Any One Else. Heard That Even On URSO .. And Your Liver Enzymes Is Normal Again. Don't Mean The PBC Isn't Progressing..

By A myPBCteam Member 12 answers

Do You Often Feel Like You Are Fighting A Bug And Starting To Get Sick?

By A myPBCteam Member 10 answers

Anyone Have Success Stories With Supplements? Omega-3? Milk Thistle? Probiotics? Have Docs Discouraged Supplements Like They Have With Me?

By A myPBCteam Member 11 answers

Could You Share Any Dietary Changes And Tips That Have Helped With PBC?

By A myPBCteam Member 14 answers
283 questions

There Is No Answer For My Bone Pain Other Than Bone Replacement And My Doctors All Said The Same Thing. I Am Too Old For Surgery

A myPBCteam Member asked a question 💭
Santa Ana, CA
A myPBCteam Member

I get infusions. I still have pain . But it helps with the osteoporosis. How is your weight I had to lose weight eat healthy and strength train.baby steps Doesn’t cure but it helps put muscle instead… read more

August 21

I Take Ursodiol And Ocaliva. I Wondered If Anyone Has Had Bloating In Their Stomach…is It A Symptom Of PBC Or Side Effect Of Ocaliva?

A myPBCteam Member asked a question 💭
Anna, TX

Taking ursodiol since 2021 and ocaliva since august 2023

A myPBCteam Member

Bloating in the stomach can be a symptom of Primary Biliary Cholangitis (PBC). According to the knowledge base, PBC can cause your belly to become larger and make you feel bloated due to excess fluid… read more

August 10

I Also Have A Tumor On Liver A Hemangioma Does Anyone Else.

A myPBCteam Member asked a question 💭
Buffalo, MN

Does Anyone Know If Periodic, Recreational Use Of CBD Gummies Is Damaging To Liver? No Alcohol Use At All.

A myPBCteam Member asked a question 💭
Visalia, CA
A myPBCteam Member

I’d like to know about thoughts on gummies too.

September 7

Sometimes, Lately, When I Get Up In The Morning My Stomach Feels Bloated With Gas. Is This A PBC Issue? Anyone Else Have This Problem?

A myPBCteam Member asked a question 💭
Wichita, KS
A myPBCteam Member

Bloating and a larger belly can be symptoms associated with primary biliary cholangitis (PBC). This can be due to excess fluid in the abdomen, which may also cause rapid weight gain. Abdominal pain is… read more

August 1

What Are Your Top Tips For Dealing With Primary Biliary Cholangitis In The Heat?

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

Be careful... I read cold water is not liver friendly. Eventhough it's hot weather we are suppose to drink room temp water. Yuck!

November 11

HAS ANYONE FOUND A SOLUTION TO PAIN IN THE BONES?

A myPBCteam Member asked a question 💭
Santa Ana, CA
A myPBCteam Member

I don’t think you’re too old. My husband’s cousin is 80 and have hip replacement surgery.

July 27

Does The Medication Ursodiol Do Any Good When You Already Have Cirrhosis?

A myPBCteam Member asked a question 💭
Jeddo, MI

I have PBC and AIH.

A myPBCteam Member

Ursodiol, also known as ursodeoxycholic acid (UDCA), is primarily used to treat primary biliary cholangitis (PBC). It helps move bile through the liver, which can improve liver function and reduce… read more

July 20

Anyone Have Vision Issues? Blurry Vision? Did You Get An Answer For It? Vitamin Deficiency Since PBC Interfears With Assimilation? Other?

A myPBCteam Member asked a question 💭
San Diego, CA
A myPBCteam Member

Low vitamin A levels can lead to night blindness, making it difficult to see in low light. This can be a concern for people with PBC due to issues with nutrient absorption. If you suspect vitamin… read more

July 13

I've Had A Bad Head Cold This Week And I Have Lab Work Scheduled On Wednesday. Does Anyone Know If I Should Wait To To Have It Done?

A myPBCteam Member asked a question 💭
Fair Play, SC
A myPBCteam Member

Thanks, Lynn. Iam feeling better, thanks! I did call the office and they just said to see how I felt. I was just wondering if anyone knew if it may skew my results.

July 6
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