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Questions & Answers

Get practical advice and insights from people who understand

Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do Beverages With Caffeine Affect Your PBC?

By A myPBCteam Member 28 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A myPBCteam Member 10 answers

Do You Often Feel Like You Are Fighting A Bug And Starting To Get Sick?

By A myPBCteam Member 10 answers

Do You Follow A Specific Diet To Help With Primary Biliary Cholangitis?

By A myPBCteam Member 18 answers
281 questions

Which Urso Mfg Actavis Vs Amneal Causes Less Stomach Issues For You?

A myPBCteam Member asked a question 💭
Deer Grove, IL

I Have PBC And Have Been Told I Need An Iron Infusion, Has Anyone Had This And Found It Made Anything Better?

A myPBCteam Member asked a question 💭
Easton, MD
A myPBCteam Member

While the context provided does not specifically mention experiences with iron infusions for PBC, it does emphasize the importance of connecting with others who understand life with PBC. On myPBCteam… read more

September 10

Not Yet Diagnosed But...

A myPBCteam Member asked a question 💭

Not yet diagnosed but researching until my next doctor's appointment: I had one round of bloodwork done and based on the results, my hepatologist sent me for another round. Those results came back positive for AMAs (63.9). Of course, I referred to my "round-the-clock doc" that led me to a PBC diagnosis. Did anyone get diagnosed based only on this? Any insight into your liver biopsy procedures?

A myPBCteam Member

Helpful information - thank you! Healthy wishes for you!

October 8

Can Your Blood Test Show You Don't Have PBC. Iam Confused My Arthritis Dr. Call And Said It's Not Showing Up On My Blood Test.

A myPBCteam Member asked a question 💭
Shreveport, LA

But my liver Dr did a biopsy last June it's shows I have it.

A myPBCteam Member

Yes , I was in the normal range but was struggling with throwing up and stomach problems. Found out I am Celiac. Biopsy showed PBC. Changed my diet to organic, gluten free . Very careful to eat… read more

October 18

Anyone Else Get Dry Mouth With A White Tongue Sometimes?(especially In The Morning)? Candida?

A myPBCteam Member asked a question 💭
Stoneham, MA

I have not been diagnosed with candida, But, I have a sweet tooth for sure!! I am trying pur gum to remedy this for myself. But I'm just wondering if anyone else has this too. Since through research I've found candida can make an issue in the bile ducts if left unchecked for sure!

A myPBCteam Member

Dry mouth is a common symptom for people with Primary Biliary Cholangitis (PBC), often due to Sjögren’s syndrome, which affects the glands that produce saliva. This dryness can lead to discomfort and… read more

August 22

Which Primary Biliary Cholangitis Symptom Surprised You The Most?

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

Dry eye and mouth i deal with. For eyes I use restasis eye drops which are prescribed to me by my eye dr. Brain fog too and is all related to the PBC because prior to that I did not have these issues.

October 30

Does Anyone Have Pbc Related Osteoporosis?

A myPBCteam Member asked a question 💭
Ruckersville, VA

I was diagnosed with pbc in 2020 then about a year later osteoporosis. Docs told me I was too young for osteoporosis but that it was a system of the pbc.

A myPBCteam Member

Yes I too have osteoperosis, but had it before I was diagnosed with the PBC as far as I know. I take dual advil when I have to and it does help. I was offered other meds, however chose not to take… read more

August 21

What Lifestyle Changes Have You Found Most Effective In Managing PBC? 🏃‍♀️🥗

A myPBCteam Member asked a question 💭
San Francisco, CA

Share the changes you’ve made in your diet, exercise routine, or daily habits that have positively impacted your PBC management.

Comment below with your lifestyle tips and let’s support each other in living healthier lives! 💬

A myPBCteam Member

I can’t eat rich food… ribs, etc…. Even if I wanted to🥴

12 hours ago

What Are The Most Common Side Effects Of Ursodiol?

A myPBCteam Member asked a question 💭
Anacortes, WA
A myPBCteam Member

The most common side effects of Ursodiol for treating PBC include:

- Abdominal pain or discomfort
- Hair loss
- Diarrhea
- Nausea
- Itching
- Rash

For more details about this treatment, you can… read more

August 11

What Other Drugs Are Available , Even With HumanaAdvantage Ursodiol 500 , Costs $217 For 90 Day. That's A Big Chunk Of Change

A myPBCteam Member asked a question 💭
Ormond Beach, FL
A myPBCteam Member

I get mine through good rx and is much cheaper than going through my insurance.

October 18
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