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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do Beverages With Caffeine Affect Your PBC?

By A myPBCteam Member β€’ 28 answers

Do You Often Feel Like You Are Fighting A Bug And Starting To Get Sick?

By A myPBCteam Member β€’ 10 answers

What Are Your Top Tips For Dealing With Primary Biliary Cholangitis In The Heat?

By A myPBCteam Member β€’ 15 answers

What Lifestyle Changes Have You Found Most Effective In Managing PBC? πŸƒβ€β™€οΈπŸ₯—

By A myPBCteam Member β€’ 16 answers
281 questions

How Do You All Deal With The Overwhelming Fatigue?

A myPBCteam Member asked a question πŸ’­
Amelia, OH
A myPBCteam Member

Low fat protein and exercise helps with brain fog and fatigue.

October 15

Is Anyone's Veins Starting To Collapse When Getting Blood Tests Done. The Nurses Are Now Using Baby Needles In My Hand To Get Blood

A myPBCteam Member asked a question πŸ’­
Belfast, UK

Who Has Osteoporosis And What Are You Treating It With?

A myPBCteam Member asked a question πŸ’­
Oakland, NJ
A myPBCteam Member

I have it. I take calcium and once a week Fosamax or the generic brand of it.

3 hours ago

Is Anyone Having A Problem With Bleeding Gums? Before Going On Urso I Had Extensive Bruising. That's Gone, But I Have Bleeding Gums Now.

A myPBCteam Member asked a question πŸ’­
Decatur, IL
A myPBCteam Member

Hi Roberta. I had that for awhile. I was put on a prenatal for anemia but also amped up my vitamin C and it went away. I think it is a sign of vitamin deficiency.

September 25

Do You Often Feel Like You Are Fighting A Bug And Starting To Get Sick?

A myPBCteam Member asked a question πŸ’­
Vancouver, BC
A myPBCteam Member

My Doctor said this feeling is due to not enough protein. At 5’7 and 170 lbs , I consume about 80 grams of protein a day. Organic chicken has Cysteine which
helps with cold symptoms.

October 15 (edited)

Do You Follow A Specific Diet To Help With Primary Biliary Cholangitis?

A myPBCteam Member asked a question πŸ’­
San Francisco, CA
A myPBCteam Member

YES! This is what I do! Also drink 4~ 6 ounces of Pedilyte and eat Pedilyte pops as I have been hospitalize for a dangerously low Sodium level! Had to have infusions.

October 27

What Prescription Or Meds Do You Take For PBC? Would Like To Compare. Anyone Take Milk Thisle?

A myPBCteam Member asked a question πŸ’­
San Diego, CA

I take Ursodiol 300 mg two times a day. Anyone take supplements? Milk thistle?

A myPBCteam Member

I take Urso also same amout that you do. I also take vitamin d. However I have bone pain, but atribute that to Osteo. Seems the more I move the better off I am. Bones hurt most everyday, but I try… read more

September 26

Have Anyone Else Heard They Might That The Drug. Ocalivas Off The Mkt. Said It's Causing More Harm To.people Who Have Scaring Of The LiverI

A myPBCteam Member asked a question πŸ’­
Shreveport, LA

I got a Web Site call Emergency Email . It's tell you all the latest updates on meds. Stuff being recalled. And food that got food illness. Since I got salmon poisoning .From Wendy's lettuces I found it. ...

A myPBCteam Member

At a PBC meeting i learned it does not stop PBC from progressing. And yes its on its way out at this point although its still in court.

October 5

Is Drinking Alcohol Ok When You Have Pbc?

A myPBCteam Member asked a question πŸ’­
Australia
A myPBCteam Member

Drinking alcohol is not recommended for people with primary biliary cholangitis (PBC). Alcohol must be processed by the liver, and consuming it can put unnecessary stress on an already compromised… read more

September 14

How To Deal With The Fatigue?

A myPBCteam Member asked a question πŸ’­
Decatur, IL
A myPBCteam Member

Exercise and low-fat protein helps

October 15
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