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Questions & Answers

Get practical advice and insights from people who understand

Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Often Feel Like You Are Fighting A Bug And Starting To Get Sick?

By A myPBCteam Member 10 answers

What Are Your Top Tips For Dealing With Primary Biliary Cholangitis In The Heat?

By A myPBCteam Member 15 answers

Do You Follow A Specific Diet To Help With Primary Biliary Cholangitis?

By A myPBCteam Member 18 answers

Could You Share Any Dietary Changes And Tips That Have Helped With PBC?

By A myPBCteam Member 14 answers
284 questions

Has Anyone Qualified For SSDI With PBC Diagnosis? I Have Hypothyroidism Also.

A myPBCteam Member asked a question 💭
Rochester, NY
A myPBCteam Member

As long as you get the papers in and have your doctor even say you cant work might help. Praying you get answers soon and the mass is nothing to add to all this. breath and sorry your dealing with… read more

February 9

Has Anyone Gained Weight From URSO?

A myPBCteam Member asked a question 💭
Watchung, NJ
A myPBCteam Member

Hi Christine. My hepatologist didn’t really say much about it. It was from my own reading that I learned about weight gain with Urso. But he did increase my Urso dosage this week because of my weight… read more

March 21

Has Anyone Been Told Not To Take Fish Oil Or Omega Three In Their Multi Vitamins With Having PBC?

A myPBCteam Member asked a question 💭
Lansing, KS
A myPBCteam Member

My hepatologist said Omega 3 is okay

April 24

Has Anyone Had Any Problems With Their Ears And Lost Pressure?

A myPBCteam Member asked a question 💭
Scottsbluff, NE
A myPBCteam Member

I have had ear problems my whole life. I've never heard of an association with PBC. Doesn't mean there isn't one.

May 12

Is There Anything That Has Helped Better Than Another With Itching?

A myPBCteam Member asked a question 💭
Morrisville, NC
A myPBCteam Member

I just itch...don't use this that make it worse.

January 11

What Advice Would You Give To Others Living With PBC?

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

Just take one day at a time!! If you are able to get out of bed and can do a little something that’s better than doing nothing at all.Live your life to the fullest. Pace yourself, don’t try to do… read more

March 2

How Has PBC Impacted Your Life?

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

Thank eveyone story of PBC. I quessGod does work in
Mysterious ways.

January 8

What Are Symptoms You Experience With PBC?

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

I had a TIPS procedure for ascites and vericis. Helped a lot except I had encephalopathy from it. Eventually went away. The itching however is crazy making.

November 11
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