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Questions & Answers

Get practical advice and insights from people who understand

Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Could You Share Any Dietary Changes And Tips That Have Helped With PBC?

By A myPBCteam Member 14 answers

What Lifestyle Changes Have You Found Most Effective In Managing PBC? 🏃‍♀️🥗

By A myPBCteam Member 18 answers

Which Primary Biliary Cholangitis Symptom Surprised You The Most?

By A myPBCteam Member 26 answers

Do You Follow A Specific Diet To Help With Primary Biliary Cholangitis?

By A myPBCteam Member 18 answers
284 questions

Does Anyone Feel Sick To You Stomach All The Time?

A myPBCteam Member asked a question 💭
Clio, MI
A myPBCteam Member

Stomach pain is common in people with primary biliary cholangitis (PBC). Most people who have pain with liver disease describe it as affecting their abdomen. Pain in the upper right part of the… read more

July 25

What Is The Best OTC (over The Counter) Medicine To Take For Pain With Pbc?

A myPBCteam Member asked a question 💭
Mesquite, NV
A myPBCteam Member

Over-the-counter (OTC) painkillers can help manage pain associated with Primary Biliary Cholangitis (PBC). However, it's essential to consult with your doctor before starting any new medication. Here… read more

July 24

How Do You Get Rid Of Pain In Your Bones?

A myPBCteam Member asked a question 💭
Santa Ana, CA
A myPBCteam Member

I can't do any of those things due to the extreme pain in my spinal column...

July 24

I Have Gallstones But Have Chosen Not To Have My Gallbladder Removed, Never Had An Attack, Is That A Problem?

A myPBCteam Member asked a question 💭
Mesquite, NV

Early pbc, on Ursodiol 500mg bid.

A myPBCteam Member

I had sludge after 7 years on Urso. Didn’t help me. I had stones that didn’t bother me until they did. Gallbladder removed during Covid in 2020. Since then I’ve produced sludge and stones in the bike… read more

February 27 (edited)

Best Painkiller To Take, OTC?

A myPBCteam Member asked a question 💭
Mesquite, NV

Back pain , newly diagnosed with pbc with ursodiol lft returned WNL

A myPBCteam Member

salt will NOT fix bone pain...neither will lotions, patches or creams!!!!!!!!!! my back bones need to be replaced but my liver doctor said I am too old!!! 75 years old

July 25

Has Anybody’s Pruitis From Their PBC Turned Into A Rash?

A myPBCteam Member asked a question 💭
Easton, PA
A myPBCteam Member

I was recently diagnosed in October 2023. My pruitis got worse after starting Urso and turned into tiny fluid filled bumps. They were all over my back, shoulders, and arms. They would break open and… read more

February 12

Do You Need A Liver Biopsy For A Diagnosis?

A myPBCteam Member asked a question 💭
Mesquite, NV
A myPBCteam Member

A liver biopsy is not always necessary for diagnosing PBC. According to the knowledge base, you can receive a PBC diagnosis if you meet two of the three requirements:

- High levels of alkaline… read more

July 21

Post Biopsy Pain

A myPBCteam Member asked a question 💭
Carlton, GA

I had a liver biopsy 12 days ago. I have recently been having some pretty intense pain around my right rib cage. It hurts to inhale deep, sneeze, yawn, and even lay on my right side. I thought it was a pinched nerve at first but nothing helps the pain. Has anyone had an issue with long term pain after a biopsy?

A myPBCteam Member

U need to tell. Ur DOC

February 7

Why Does My Itching Get Worse When I Am Ill

A myPBCteam Member asked a question 💭
Fort Wayne, IN
A myPBCteam Member

Mine does that two. Usually if I get in the shower lukewarm water and wash my hair it goes away for a few days

February 7

Anybody Else Have Hyperpigmentation

A myPBCteam Member asked a question 💭
Pittsburgh, PA
A myPBCteam Member

People with Primary Biliary Cholangitis (PBC) may experience skin changes, including hyperpigmentation. This refers to areas of darker skin that are not related to sun exposure. If you have concerns… read more

July 18
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