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Questions & Answers

Get practical advice and insights from people who understand

Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Follow A Specific Diet To Help With Primary Biliary Cholangitis?

By A myPBCteam Member 18 answers

What Are Your Top Tips For Dealing With Primary Biliary Cholangitis In The Heat?

By A myPBCteam Member 15 answers

Could You Share Any Dietary Changes And Tips That Have Helped With PBC?

By A myPBCteam Member 14 answers

Are You Frustrated With Finding Effective Treatments For Primary Biliary Cholangitis?

By A myPBCteam Member 12 answers
284 questions

Just Wondering If Fevers Are Part Of PBC? I Get An Unexplained Fever And Very Tired For 3 - 5 Days. It Happens Every Few Months.

A myPBCteam Member asked a question 💭
Kingston, NY

I've had PBC for years. Taking Ursidol. I also have sjogrens.

My Gastro Doc Has Prescribed Cholestyramine For My IBS-D. Does Anyone Else Take This?

A myPBCteam Member asked a question 💭
Illinois City, IL
A myPBCteam Member

Yes, it is constipating for me too, but since I tend toward diarrhea when my IBS flares, I'm hoping my body settles into a normal cycle for bowel movements. What is "normal"? LOL

March 12

Does Anyone Else Have Trouble Sleeping? I Fall Asleep Easily, But I'm Having Trouble Sleeping For More Than 4 - 5 Hours A Night.

A myPBCteam Member asked a question 💭
Columbia, MD
A myPBCteam Member

I fall asleep but then I am up 3 or 4 times a night to uriante or just cannot get back to sleep. I was give trasadone sP. but it did not do the trick, so I do not take anything. I will get up in… read more

March 28

Can You Eat Seafood Like Shrimp? I Was Told You Should Not. I Do Not Eat It Raw I Cook All My Seafood. Thanks.

A myPBCteam Member asked a question 💭
Lebanon, PA

I was diagnosed with PBC on May of 2021.

A myPBCteam Member

No raw seafood, I never eat raw seafood anyway.

March 13

Ursodiol

A myPBCteam Member asked a question 💭
Westminster, MD

My gallbladder and part of my bile duct was removed many years ago due to gallstone impaction. Doesn’t this negate the effectiveness of this medication?

A myPBCteam Member

It should not because your liver has bile ducts that need to remain open so the bile can go where it needs to go.

February 24

Is There A Job Can Fit Someone Who Has Bad Symptoms From PBC,I'm Unemployed And Can't Keep A Job Because Of Mindfog,itchy,fatigue Thank U

A myPBCteam Member asked a question 💭
Los Angeles, CA
A myPBCteam Member

I work 3 days a week and will continue to do so as long as I can. I do get tired but just working 3 days really works for me and I feel better for it. Good luck

March 28

How Do Beverages With Caffeine Affect Your PBC?

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

I drink my coffee black, does not bother me at all.

August 19

Has Anyone Tried A More Holistic Approach Instead Of All The Meds?

A myPBCteam Member asked a question 💭
San Diego, CA

Has Anyone Tried Holistic Treatments For Skin Itching Like Acupuncture Etc?

A myPBCteam Member asked a question 💭
San Diego, CA
A myPBCteam Member

I have not, my itching is worse if I perspire or soak in the tub so I avoid those things as much as I can. Acupuncture would be worth trying, Chinese medicines do focus on specific organs so perhaps… read more

February 27

How Long Do You Wait For A Liver Once Put On Transplant List With Stage 4 Diagnosis

A myPBCteam Member asked a question 💭
Pensacola, FL

My dr, in Nov said I was in stage 3 transitioning to stage 4. I go to mayo clinc to start my tests on mar 5th to see if im a candidate or not

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