Is It Healthy To Mix Fruits Nuts That Are Listed As Good For My Liver In Nutri~ Bullett And Drink Them Every Day?
I just found out yesterday. The doctor says I’ve had this for 2 years?im wonder why my oncologist didn’t see this as I do infusions for years with a cbc before an infusion and my numbers have been going up for 2 years. She never saw it??????i don’t know what number I am or what caused this.my Dr. is doing a Fibro on the 20.i hope you are doing well!!
I was just diagnosed in January and have only had one appointment with my GI Dr. He is really great and keeps in touch with me on occasion. I see him on the 26th of March. I am on Orso. So I do not… read more
How Do You Find A Doctor Who Specializes In PBC?
Best way is to find a list of liver doctors or GI doctors and ask them how many people with PBC they have treated or are currently seeing. That made the difference between my well meaning old doctor… read more
Does Anyone Use Dose? If So, Has It Made A Difference In Your Health?
What is Dose?
Dietary Changes
I’m looking to learn more about any dietary changes I can make to help. Also things to cut from my diet and things I might should add to it. Would love to hear about things your doctors have shared with you.
Or supplement drinks
Do Any Of You All Have Other Autoimmune Disorders Along Side PBC? Do You Have Other Organ Involvement Including Intestinal,pancreas,gall B?
Hi Stephanie, I have Vitiligo, atrophic gastritis and 2 others. Gallbladder removed in 2019 which is what has lead to PBC as my newest diagnosis as the pain never went away... From the outside, people… read more
Do Any Lotions Help With The Itching
Ice packs are the only thing that has ever helped me 100%
Does Anyone Else Have Very Delicate Skin That Bruises And Tears Easily?
My nails are the same. I've always had ridges.
How High Are Your Antinueclear Antibodies?
I have to check my lab results thanks I will get back to you. Just came down with sore throat and fever. I'm going to bed. Thank you for your answer
Rifampin, Anyone Using This Drug?
Thank you. I am taking claratin right now and it seems to work. As long as it is working will stay with ot. Hope it does not get worse
Just Wondering If Fevers Are Part Of PBC? I Get An Unexplained Fever And Very Tired For 3 - 5 Days. It Happens Every Few Months.