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Questions & Answers

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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Are You Frustrated With Finding Effective Treatments For Primary Biliary Cholangitis?

By A myPBCteam Member 12 answers

What's A Common Misconception About Primary Biliary Cholangitis?

By A myPBCteam Member 18 answers

What Are Your Top Tips For Dealing With Primary Biliary Cholangitis In The Heat?

By A myPBCteam Member 15 answers

Which Primary Biliary Cholangitis Symptom Surprised You The Most?

By A myPBCteam Member 26 answers
283 questions

Is It Healthy To Mix Fruits Nuts That Are Listed As Good For My Liver In Nutri~ Bullett And Drink Them Every Day?

A myPBCteam Member asked a question 💭
Decatur, GA

I just found out yesterday. The doctor says I’ve had this for 2 years?im wonder why my oncologist didn’t see this as I do infusions for years with a cbc before an infusion and my numbers have been going up for 2 years. She never saw it??????i don’t know what number I am or what caused this.my Dr. is doing a Fibro on the 20.i hope you are doing well!!

A myPBCteam Member

I was just diagnosed in January and have only had one appointment with my GI Dr. He is really great and keeps in touch with me on occasion. I see him on the 26th of March. I am on Orso. So I do not… read more

March 7

How Do You Find A Doctor Who Specializes In PBC?

A myPBCteam Member asked a question 💭
Morrison, CO
A myPBCteam Member

Best way is to find a list of liver doctors or GI doctors and ask them how many people with PBC they have treated or are currently seeing. That made the difference between my well meaning old doctor… read more

March 8

Does Anyone Use Dose? If So, Has It Made A Difference In Your Health?

A myPBCteam Member asked a question 💭
Arcadia, FL
A myPBCteam Member

What is Dose?

March 28

Dietary Changes

A myPBCteam Member asked a question 💭
Grapevine, TX

I’m looking to learn more about any dietary changes I can make to help. Also things to cut from my diet and things I might should add to it. Would love to hear about things your doctors have shared with you.

A myPBCteam Member

Or supplement drinks

July 12

Do Any Of You All Have Other Autoimmune Disorders Along Side PBC? Do You Have Other Organ Involvement Including Intestinal,pancreas,gall B?

A myPBCteam Member asked a question 💭
Abingdon, VA
A myPBCteam Member

Hi Stephanie, I have Vitiligo, atrophic gastritis and 2 others. Gallbladder removed in 2019 which is what has lead to PBC as my newest diagnosis as the pain never went away... From the outside, people… read more

June 20

Do Any Lotions Help With The Itching

A myPBCteam Member asked a question 💭
Las Vegas, NV
A myPBCteam Member

Ice packs are the only thing that has ever helped me 100%

March 22

Does Anyone Else Have Very Delicate Skin That Bruises And Tears Easily?

A myPBCteam Member asked a question 💭
Decatur, IL
A myPBCteam Member

My nails are the same. I've always had ridges.

March 25

How High Are Your Antinueclear Antibodies?

A myPBCteam Member asked a question 💭
Rockaway, NJ
A myPBCteam Member

I have to check my lab results thanks I will get back to you. Just came down with sore throat and fever. I'm going to bed. Thank you for your answer

February 27

Rifampin, Anyone Using This Drug?

A myPBCteam Member asked a question 💭
Lombard, IL
A myPBCteam Member

Thank you. I am taking claratin right now and it seems to work. As long as it is working will stay with ot. Hope it does not get worse

March 29

Just Wondering If Fevers Are Part Of PBC? I Get An Unexplained Fever And Very Tired For 3 - 5 Days. It Happens Every Few Months.

A myPBCteam Member asked a question 💭
Kingston, NY

I've had PBC for years. Taking Ursidol. I also have sjogrens.

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