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Is Anyone On Ocaliva "only" Treatment? Unable To Tolerate Ursodiol. Would Love To Hear Your Experience Of Ocaliva "only" Treatment.
My diagnosis is PBC. Interested in learning side effects, the good and bad, etc. of Ocaliva from your experience. Also, improvements you have experienced and the time frame before you experienced improvements. Whatever you are able to share is welcome and appreciated.
Fatigue
Yes very I do all the time.
Does Anyone Ever Feel That People Just Don’t Understand How You’re Feeling When Fatigued And Have To Decline On Invitations Because Of It?
It’s definitely challenging. I enjoy my good days and when I’m having a bad day I just look forward to the next good day. One day at a time!
AMA Elevated Alp Normal. Biopsy Fatty Liver. Have No Diagnosis??
What is your alk phos? That will give you a hint. I have fatty liver, normal enzymes, and ana speckled centromere
Just Recently Diagnosed With PBC So All Of This Is Very New To Me. What Does It Mean To Be AMA Negative With PBC?
I am AMA negative too. The antimitochondrial antibody (AMA) test is one of several different bloodtests doctors can order when they suspect liver disease. 95% of people with PBC are AMA positive… read more
Hi Everyone 👋 Is Anyone Underweight, I'm 100lbs And Sometimes Less, My Mother Was The Same, Thank U💖
If you struggle with nausea try rubbing ginger on your wrists
Do You Get Pain In Your Tummy After You Eat
seems every night i suffer with pain that wraps around my lower back and hips in to stomach i had scan done waiting for results
good to know
If Anyone Also Has Sjogrens, Visit SjogrensAdvocate.com. Content Written And Researched By A Doc With Sjogrens - Really Informative!
Hi Alison. Yes the fatigue is ruining my quality of life. So frustrating to not be able to do the things I want to do.
Curious. My Mom Had Sarcoidosis And Am Wondering If This Is An Autoimmune Disorder? She Also Had High Blood Pressure And Edema.
Thank you for that info. How are you doing with your pbc? I go to my dr on the 26. Praying for good news. I do not even know what stage I am in
Do You Have A +pos AMA Test? Is That The Bloodwork Everyones Talking About? I’ve Had Blood Work For Yrs & My Drs Haven’t Figured It Out Yet
I’ve had upper right pain and elevated liver enzymes, itch, dry eye, but my AMA is negative…4 diagnosed auto immune conditions so they think it’s PBC.
I have AMA negative PBC. Diagnosed with a liver biopsy/bloodwork . I also have elevated liver enzymes and the itch. Not so much dry eyes
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